Wednesday, February 24, 2010
First appointment!
Had the first midwife appointment last night. Pretty uneventful, just talked about how things are going and how things have been for the past year and a half. Tried to hear the heartbeat, think we might have heard it for a second but then the baby swam away, but in the process we did hear a nice kick at the Doppler so at least we know something's alive and swimming in there! Next appointment is on March 23.
Tuesday, February 16, 2010
Developmental ped update
So we had our dev ped referral at Rochester yesterday. Actually, yesterday's appointment was just with the intake social worker. She went through the history, what we were concerned about, what had been done so far, and all that. She agreed that he is indeed behind and is going to set up an appointment with the developmental pediatrician. Except, there's a 6- to 9-month waiting list, so it's not going to be any time soon. There is a nurse practitioner there, but she's leaving in a month, so the social worker is going to see if there's any way she can squeeze us in before then. Otherwise it'll be summertime before we have anything new. She gave us a couple of ideas to help Luke out (like making a picture book of common things in our house and kitchen to see if he can point to what he wants instead of throwing a tantrum because he's *trying* to tell us what he wants but we don't understand him). So I'll get started on that this weekend. I'm kind of excited, it'd be so cool if he understands the book and actually uses it.
Wednesday, February 10, 2010
Charity Auction
I know I have at least 1 follower, maybe some more anonymous ones, but I want y'all to pop on over to this blog and check out the auction they're putting on. This little boy has epidermolysis bullosa, which (don't quote me, I'm not a doctor) means he's missing some proteins that hold the layers of his skin together. The slightest friction on any part of him causes his skin to rub right off. Ouch, right? What's worse is that it's deadly, and (again, I'm not an expert, I've just been following this cute little guy since I stumbled across his blog almost a year ago) depending on the type of EB you may not make it through your first year. They're holding the auction to raise money for DebRA to find a cure.
Tuesday, February 2, 2010
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